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Aceso Interactive Sphere – A Review

There’s a monitor hanging in my room instead of the usual TV. It can function as a TV, of course, but it does a whole lot more. Some of it well, some of it not so well. The most important feature, in my view, is that it also displays patient information: information that the patient needs to see, as well as information that nurses and PCAs need to see when working with the patient on a day-to-day basis. This feature is intended to replace the whiteboard that is still, for now, also hanging in my room. Here, I want to focus on the patient information piece. We’ll start by considering the “As-Was” of the Patient Whiteboard, then consider the “As-Is” of the Patient Information Screen.

Patient Whiteboard

The whiteboard has the following sections and subsections. Refer to the image below for how these sections are laid out.

  • Static Information
    • Room #
    • Room Phone #
  • Patient Name. An entry field for patient’s name. In my case, the name that I prefer to be called by has been  written in.
  • CARE TEAM. A series of fixed positions in the care team allowing for actual names to be entered.
    • MD (doctor)
    • RN (nurse)
    • CM (case manager)
    • OT (Occupational Therapist)
    • PT (Physical Therapist)
    • SLP (Speech Language Therapist)
    • TR (?)
    • <blank>
  • MOBILITY. Three fixed mobility types, allowing for specifics to be entered.
    • Bed Mobility
    • Bed to Chair Transfer
    • Ambulation or Wheelchair
  • DIET/SWALLOWING/COMMUNICATION. Three fixed fields, allowing for specifics to be entered.
    • Diet
    • Swallowing
    • Communication
  • ADL.  Assisted Daily Living. Three fixed fields, allowing for specifics to be entered.
    • Toilet Transfer
    • Bathing
    • Dressing
  • SAFETY. Three fixed fields allowing for specifics to be entered,
    • Safety e.g., Fall Risk
    • Precautions
    • Equipment
  • OTHER.
  • DAILY SCHEDULE / DATE

In my case, most of these fields have not been entered, and even if entered, they have not been updated. In particular, someone has entered an MRN (Medical Record Number) in the OTHER section, but’ it’s not mine. I can only assume that it’s left over from a previous occupant. Also, in the DAILY SCHEDULE field, the dietician wrote in the phone number for the kitchen,

Patient Information Screen

The monitor appears to have a 16×9 display, I measured it from my bed using my iPhone Measure app, and got a dimension of 43” wide and 23” high which actually makes it a couple of inches wider than you’d expect with that ratio. The screen has the following sections and subsections. Refer to the image below for how these sections are laid out.

TV and Generic Information

This section occupies the top left corner of the monitor screen, with dimensions 30.5” by 17”. Accounting for measurement errors, this is consistent with a 16 by 9 ratio for broadcast TV. The section accounts for approximately 50% of screen real estate. When not displaying TV there is static picture of patients on modified bikes, overlaid with the following sections. Clicking each section yields available options.

  • tv & Movies
  • my Health
  • my Meals
  • my Care
  • my Comfort

Patient Interface

The remainder of the display is further broken down into sections with information specific to the patient.

  • Static Information
    • Patient Name
    • Location (Spaulding)
    • Room #
    • Room Phone #
    • Today’s date and time
    • Est. Discharge Date.
  • Care Team. A partial list of the people and their  positions in my care team. The doctor assigned to the care team is unlikely to change over the course of the patient’s time at Spaulding, similarly, the person assigned as Case Manager is also unlikely to change. Other positions, however, change multiple times a day – usually three times a day corresponding to shift changes. The dynamic positions are identified by first name, initial, position identifier. The only dynamic positions that I’ve seen are RN and PCA. They are very helpful to me as I can greet them by name, and it also helps me remember if I’ve met them before. This window has two subheadings:
    • Care Team Includes: There is space for three positions, one of which is assigned to the doctor. The remaining two list the PCA and RN
    • Case Manager: Space for one name
  • Today’s/Tomorrow’s Appointments. Usually labeled Today’s Appointments, but at 6 pm each day, it switches to Tomorrow’s Appointments. This is a schedule of PT and OT appointments. For each appointment, there are two rows. There is only space for two appointments, although on most days I have three. The space limitation is addressed by the window scrolling every few seconds to show the rest of the list. At 6 pm each day, it switches to Tomorrow’s Appointments.
    • Time, Therapy Type (example: 2:00 PM – 3:00 PM, PT)
    • Therapist.  Name, as first name, last initial. There’s only space for one name, although some appointments may have two if a student or a new therapist is being mentored.
  • My Diet Specifics of the patient’s diet, using the IDDSI (International Dysphagia Diet Standardization Initiative) levels to specify drink thickness and food textures.
    • Diet: example: Dysphagia
    • Solids: example: Regular (IDDSI 7R)
    • Liquids: example: Thin (IDDSI 0)
  • Safe Swallowing: Only applies to patients who have problems swallowing. In my case this entire section is blank.
  • Mobility/ADL (Assisted Daily Living). This window has multiple entries. It’s not clear if they are fixed sections or dynamic; I suspect fixed. The sections on my display are:
    • Bed mobility: Describes ability and precautions for transfers from bed to walker and wheelchair.
    • Toilet Transfer: Describes ability and precautions for accessing the toilet.
    • Bathing/Dressing: Describes ability and precautions
    • Safety: Blank in my case
    • Precautions: Overall precautions. In my case it refers to the ROMAT (Range of Motion as Tolerated) of my left and right legs.
    • Equipment: Blank in my case

As-Was versus As-Is

Most of the sections are the same in the Patient Whiteboard and the Patient Information Screen. The advantage of the screen is that it is more easily and consistently updated.

In particular, the Mobility/ADL section allows for more detail that it is important for the changes in nursing and PCA staffing to view. In my case, the section has a little pink leaf icon (at least I think it’s a leaf, but a pink leaf makes no sense) in the top right corner. I asked one of my PCAs what it meant. He laughed and said, “no one knows!” I asked Sara, an OT though, and she said it meant “Fall Risk” and that 95% of patients had it on their displays. The reasoning for the leaf icon is quite a stretch. It’s using the homonym “Fall,” as in the season (leaf → fall, geddit?) to alert the staff that the patient is a Fall risk.

One advantage of the old whiteboard is that it allows for on-the-spot corrections and additions by the staff if they see an error or omission. In practice, however, they rarely make corrections. The whiteboard is not used much, and it’s hung in an awkward place for nurses to access, to the side of the bed. Another minor advantage of the whiteboard is that it can display additional information that the screen is not set up for. In my case, a nurse wrote in my preferred name and the phone number of the kitchen. There are, however, some disadvantages. There’s no automated checking that the information is correct. There’s information on mine that’s out of date. Also, someone had written an MRN (Medical Record Number) on it that is not mine. Presumably it was for a previous occupant.

Possible Improvements

The Patient Information Screen has several areas that could be improved. What seems like an odd quirk at first is actually a necessary design feature, namely that the ON/OFF button on the patient controller does not actually turn off the display. It just turns off the top left 50%, devoted to TV and Generic Information. The other 50% of the display has important information, so it’s always on and cannot be turned off, except by unplugging it. The section does dim in the evening, but it’s distracting when you’re trying to sleep.

My overriding concern is that the design is trying to jam two things together that are very dissimilar. The TV and Generic Information display is the same for all patients and can be turned off and on. We can design for the use of real estate because we know that the size of each block will not change, and it’s not a safety issue if it’s turned off. Conversely, for the Patient Interface, designing for the use of real estate calls for dynamically resizing windows. This is because the types and amount of information will be different for each patient, and subject to change multiple times a day. In the As-Is design, however, the patient information windows are relegated to fixed sized windows clustered around the bottom and right edges of the screen.

For example, the Today’s Appointments window is probably the most important information for a patient, but it occupies a mere 5% of the overall screen and is not large enough to fit all the relevant information. The kludgy design implemented to overcome this limitation is to cycle the screen to show different sections of the overall schedule. It would also be nice to see what tomorrow’s schedule is, but I have to wait until 6 pm to see this. The information in this section ought to be, but apparently isn’t, synchronized with PT and OT visits in the Epic Patient Gateway.

The second most important window to me is the Care Team window. Two of the roles listed here (Doctor and Case Manager) will probably not change over the course of a patient stay, whereas the other roles (RN and PCA) will change several times a day. It’s helpful for the patient  to get to know the staff that they interact with on a frequent basis. And yet, this window is also relegated to a mere 5% of the overall screen. Moreover, since two of the positions are static information, they might be better placed with the other Static Information window, positioned in the lower left corner.

Over on the right side of the screen, the My Diet windows appear to have a blank row. It’s not clear why it needs to be there. Also, in my case, the entire Safe Swallowing window is blank. If it were to swap places with the Today’s Appointments window, you’d be able to get at least three appointments listed. The Mobility/ADL window, being space constrained, has a bunch of acronyms. In my case, I counted 16 of them. The use of acronyms may be all well and good for the trained staff who are the primary users of this information, but let’s not forget that the patient is also an important participant in their own recovery, and they should also be able to understand and act on the information; this is made much harder by the reliance on acronyms.

Solution Options

I’m coming to the end of my two week stay here, so I’ve had plenty of time to think about how to address my major concern that the patient interface needs major improvements. Any solution will need to address the fact that there’s simply not enough screen real estate, and what space there is in the current design is limited by not being able to use dynamic window sizing. So here are three possible solutions to lack of space.

  1. Ditch the attempt to combine two incompatible information displays on one screen, and use two different displays. These could be hung stacked, side by side, or totally separated. That way you open up more possibilities for the design of the patient interface, with static windows when the information is static, and dynamic windows when the information is dynamic.
  2. Hang a single screen in portrait mode and divide into two regions. One region could be TV in 16:9 aspect ratio with generic options below. The second region would be a rectangular space for patient information.
  3. Keep the current layout, but provide a patient option to resize the area devoted to TV and Generic Information. Patients would have the option to make this area LARGE (the As-Is size), MEDIUM, or SMALL. When set to these last two options, the Patient Interface section would resize the dynamic information windows, especially the Care Team and Today’s/Tomorrow’s Appointments windows.

Day 89: Saturday, August 08

I went to sleep early, around 9:30 pm. I was exhausted from a hard PT session yesterday with the two therapists: Zaya and Tori.

  • First, I had to walk (with my walker) for six minutes straight.
  • Then, I had to walk a fixed distance (~60 ft there and back) as fast as I could
  • Then they had me transfer from the chair to the floor, via an intermediary level
  • Slide over and bump up and down some steps
  • Transfer back to the chair

It was a lot, but I managed it, except for the transfer which they had to help me with.

Today, being Saturday, I see I have no OT or PT sessions scheduled, which should give me time to recuperate. Tomorrow, Sunday, I have a single OT session scheduled. It all starts up again on Monday.

Martha and Charles visited yesterday. They brought me a large bag of Liquorice Allsorts, and a bag of Jelly Babies. We talked about Charles and my experiences being brought up British. Charles came over in 1968 as a small child so doesn’t have many memories of England. His father was an engineer and came over as part the “Brain Drain,” as the exodus of technical talent to the US was referred to at the time. However, since others from his father’s company came over at the same time, Charles found himself as part of a British ex-patriate community. I was Charles’s reference for his gaining his British passport recently, and he’s thinking of visiting in the next few months. I asked them if they’d heard of the upcoming by-election in Clacton, where Nigel Farage (boo, hiss!) is running as the Reform party candidate. The Lib Dems, Tories, and Labor are not competing, but a whole slew of joke third party candidates have paid their £500 deposit to be entered on the ballot; amongst them Count Binface. He probably won’t win, unfortunately, but such is the backlash against Farage that he’ll probably get more than 5% of the vote1 and his deposit back.

Maureen got here at 11 am, by which time I’d already gotten up, been to the bathroom, got dressed, and in my wheelchair. We went outside and she pushed me around the outside of Mayor Menino Park, jutting out into the channel that connects the Mystic River with the inner harbor. It was already in the upper 80s and sunny, and I wished I had my hat and sunglasses! It was good to be outside, the first time since May when I attempted a bumpy ride in the backyard to the greenhouse and back. I would love an all-terrain wheelchair, but they’re vey expensive and not covered by Medicare. And anyway, since the end goal is that I be able to walk under my own steam, it’s not worth it. Back inside, we took a tour of the facility, looked at the swimming pool through locked doors, and visited the gym, stocked with all the toys that a therapist could wish for, and more..

Better not be any more bears around here!

Back in my room, I ate lunch and got back into bed. After Maureen left, I realized how tired I was and fell asleep for a bit less than an hour. Google showed me that I immediately fell into a deep sleep for 20 minutes.

  1. Binface received 26.9% of the vote while Farage won 63.3%. Binface had his highest share yet with 9,455 votes, having lost to no fewer than three prime ministers, and one who later became prime minister, in previous attempts. ↩︎

Day 86: Wednesday, August 05

Not a great sleep. My bad back kept me awake. Only 72 on the Fitbit, but I did manage 40 minutes deep sleep, which is typical. Had OT first thing this morning; more about transferring and using the shower chair. An hour’s break and then it was PT with Chris. I really appreciate him; he listens and has good ideas – it’s not just cheerleading. He’s a recent graduate from the MGH Institute, but I’ll bet there’s a lot of competition to get a position here. We did some walking, using the newly allowed weight bearing on the right leg. It’ll take some time to get used to the new rhythm, and surprisingly, to me at least, I was panting after a mere 30 ft – the same distance I was doing yesterday with touchdown weight only. At least the right leg didn’t hurt. I think the reason I was panting was because there are muscles in the leg that haven’t been used at all since I broke it. I was quite exhausted by the time I got back to the room and dozed most of the time Maureen was here.

I now have a projected discharge date, August 15, which would make it a mere two weeks since I was admitted. In which time I have to demonstrate that I can navigate the stairs, use the bathroom unassisted, etc. At the rehab conference yesterday, OT and PT summarized where I am relative to where I was on admission. It shows some changes, but I need to show a lot more if I am to be discharged as planned.

OT Functional Report (blank is not assessed or needed)

MetricAdmissionCurrent
TransfersModerate assistance(P) Contact guard
GroomingModerate assistanceModerate assistance
ToiletingModerate assistanceModerate assistance
Toilet TransfersModerate assistanceModerate assistance
TransfersMin assist to left x 1Min assist to left x 1
Upper Body DressingWith set upWith set up
Lower Body DressingMaximum assistanceMaximum assistance
Tub/Shower TransferUnable to assessModerate assistance
Bathing/ShoweringMinimum assistanceMinimum assistance

PT Functional report (blank is not assessed or needed)

MetricAdmissionCurrent
Rolling RightIndependentIndependent
Rolling LeftIndependentIndependent
Supine to SitModerate assistMinimum assist
Sit to StandModerate assist, Minimum assist (mod A x1 plus min 2nd from w/c , min  x1 from edge of bed) x 2Minimum assist x 1
TransfersMin assist to left x 1Min assist to left x 1
AmbulationContact guard x 2 (2nd person for close w/c follow)Contact guard x 2 (2nd person for close w/c follow)
Assistive DeviceWalker – rolling, Other (Comment) (close w/c follow)Walker – rolling, Other (Comment) (w/c follow due to short distances)
StairsUnable to assess (Comment) (unsafe-pt unable to perform task) x 1 Moderate assist x 1
WheelchairIndependentIndependent

Had my long-awaited video call with Dr. Choy. He was 40 minutes late for the call, but at least we had it. He went over the tests to date. Delighted that I’d already had the heart ultrasound and the port implant. The MRI on my right upper arm was non-committal and he’ll need a biopsy as some point, but this can happen either before or after the chemo has started. He’s seeing a lot of necrotic lesions which is puzzling to him. According to Doctor Google “Necrotic lesions on bone mean that a part of the bone tissue has died due to a loss of blood supply, severe infection, injury, or underlying disease.” I had thought at one point that the tumor on the right tibia was a chondrosarcoma, but he assured me that it was osteosarcoma, which can be treated with a cocktail of Doxorubicin and Cisplatin. He’s constrained as to how much Doxorubicin he can used as there’s a lifetime limit and I had it before when I was being treated for Burkitt Lymphoma. Both sound pretty nasty. The good news is that the infusions can take place at the MGH Waltham facility, rather than here in Boston. With the chemo, he estimates a 50% chance of a cure.

PT this afternoon was curtailed because of the call with Choy. We did measurements of how much I could bend the left and angle the right foot. The session was not as exhausting as the morning session but left me in some pain, so I had the nurse give me the full 4 mg of Dilaudid.

Day 85: Tuesday, August 04

Slept better. 82 for my Fitbit sleep score, with 1 hr. 44 minutes deep sleep. I saw that OT had a session with me at 8 am and wondered what that was all about. It turns out that it’s shower time. Wow! I haven’t had a shower for weeks. I realize that, bed baths notwithstanding, I must be smelling fairly ripe!

I had two PT sessions yesterday and three today. Spaulding has amazingly good therapists and their gym has all the toys. Today we did sessions working with stairs, walking (I can do about 30 feet at a time), isometric exercises for the legs, and weight machine for the arms. I had mentioned to the therapist, Tori (short for Victoria), that there was some confusion about whether I could progress to some weight bearing on the right leg or not. SLC had said a week ago that I would be able to be 50% weight bearing by now, but the ortho team had told Spaulding that I was touchdown only. Tori called up SLC, and they’re going to change my weight bearing status tomorrow. That’ll mean a whole new set of exercises, I expect. That’ll be exciting!

I am tired this evening, but I’m so glad I got into Spaulding. They don’t take everyone. I would never have gotten this level of therapy anywhere else. I’m already seeing improvements in how I use the walker to get up from a sitting to a standing position, and back, and in walking as well.

Day 82, Saturday, August 1

Last day at MGH. Slept ok for a couple of hours, but nurse came in to check vitals, and my blood pressure was low: 83 over something. She paged the doctors, and later, around 2 am, came to set up an IV of saline for hydration. Vitals at 4 am showed blood pressure back in the normal range. Eagerly awaiting news of when they’re going to transport me to Spaulding.

News came that they’d transport me at 12:30, and Jonathan, the driver with an impressive mustache, showed up right in time. I’ve been at MGH this time since July 16th, over two weeks, and gotten to know many of the nurses, PCAs, doctors and NPs quite well. They’ve been marvelous. I am impressed with how well they interact with other patients as well. No Nurse Ratchets here!

Arrived at Spaulding via chair ride and wheeled up to my room. Oh Joy! It’s on the 5th floor, single room, with a stunning view of the harbor!

Talked with the doctor who checked me in and completed the MOLST form, so that’s another To-Do checked off. They seem to be leaving me alone for now.  Rehab starts tomorrow at 9 am, according to the schedule on the TV. Strange User Interface. Firstly, you can’t turn it off. Pressing the OFF button on the remote merely causes the main window to cycle between screens, without turning off the display. Secondly, there are windows both at the bottom and right of the main screen, but the taller windows on the right have unused real estate, whereas the shorter windows on the bottom you have to scroll. Seems like a poor UI design. Hopefully I won’t be here for V2.0 to be released!

Talked for a while with the PCA Mary Ann who brought me a cup of tea in evening. She’s from the Philippines, so we had an instant connection when I told her about Miranda’s two years in the Peace Corps and our visit there. We talked about family mostly.