Tag Archives: MGH

Day 74: Friday, July 24

I completed updating my blog with entries from 2005/6 when I was being treated for Burkitt Lymphoma at Brigham and Women’s Hospital in Boston. I rearranged the menus a bit and shared the link with my small group of correspondents. I am pleased that some, at least, have taken me up on it.

I talked with Dr. Edwin Choy, director of the Sarcoma Oncology Center at MGH. He gave me the basic spiel about osteosarcoma and the limited progress made over the last decade. I would be getting adjuvant chemotherapy (adjuvant means a treatment that helps improve the effectiveness of a main medical action, such as surgery). I get the sense that he is not yet read in on my case. He knows I had Burkitts, but not the specific chemotherapy regimen. It turns out that, even though it was over 20 years ago, there’s a lifetime limit to the amount of certain drugs that my body can tolerate. Lozano is sure that he got all the infected bone and that it had not metastasized, so perhaps the treatment will be “watch and wait” versus immediate chemo. Choy knows my oncologist at B&W, Dr. Eric Jacobsen, as well as Dr. Eddy Chen, my oncologist at Emerson. My hope, although we didn’t discuss this, is that any infusions could be done at Emerson’s Naka Infusion Center.

A Step in the Dark

My hopes of recuperating at home for a few more days were dashed last week when I had to make an outpatient visit to the Emerson lab for a routine blood draw. I was transferring from the car to a wheelchair and pivoting on my good left leg when I heard a crack and felt intense pain. I fainted for a brief moment. The world turned bright white! From having only one good leg I was left with none. The health lab declined to do the blood draw and called a doctor to check me out. It was obvious by now that I would not be going home and would need to be admitted to Emergency. Rather than wheel me there they ordered an ambulance to take me the 100 yards up the road. Must be the shortest ambulance ride ever, but I’m sure that’ll make no difference as to how much I’m billed! I spent a couple of nights at Emerson before being discharged back to MGH. I had surgery on my left leg three days ago and now have a titanium alloy rod taking up most of the internal portion of my left femur, plus a few #14 screws to attach it to the bone. PT was here yesterday and I’m healing well. The story doesn’t end there, however, because I have also been diagnosed with osteosarcoma. While it has not metastasized and the surgeon removed all the infected bone, I’m still facing several months of chemotherapy. Oh well, I still have a lot of books to read, music to listen to, and time to work on my blog at https://onedarnthing.blog/  Feel free to browse.

Day 71: Tuesday, July 21

Stayed up late working on my blog, then watched two episodes of “The Expanse.” As a result I’m a bit sleep deprived this morning. I checked the results of my morning CBC blood test following my blood transfusion yesterday. Although RBC and Hæmoglobin are up a bit, it’s not a significant amount and they’re still below normal. WBC is still high.