Category Archives: Health

A Step in the Dark

My hopes of recuperating at home for a few more days were dashed last week when I had to make an outpatient visit to the Emerson lab for a routine blood draw. I was transferring from the car to a wheelchair and pivoting on my good left leg when I heard a crack and felt intense pain. I fainted for a brief moment. The world turned bright white! From having only one good leg I was left with none. The health lab declined to do the blood draw and called a doctor to check me out. It was obvious by now that I would not be going home and would need to be admitted to Emergency. Rather than wheel me there they ordered an ambulance to take me the 100 yards up the road. Must be the shortest ambulance ride ever, but I’m sure that’ll make no difference as to how much I’m billed! I spent a couple of nights at Emerson before being discharged back to MGH. I had surgery on my left leg three days ago and now have a titanium alloy rod taking up most of the internal portion of my left femur, plus a few #14 screws to attach it to the bone. PT was here yesterday and I’m healing well. The story doesn’t end there, however, because I have also been diagnosed with osteosarcoma. While it has not metastasized and the surgeon removed all the infected bone, I’m still facing several months of chemotherapy. Oh well, I still have a lot of books to read, music to listen to, and time to work on my blog at https://onedarnthing.blog/  Feel free to browse.

One Step Beyond!

It’s now 52 days since I broke my tibia and began my medical journey. Numerous doctors, surgeons, hospital staff, rehab staff, my friends, you, my correspondents, my daughter Miranda, and above all, my wife Maureen, have kept me from descending into madness, for which I am sincerely thankful. I was discharged from MGH today and am writing this from home. I was previously discharged to rehab, but it turned out that somewhere along the line I’d picked up a nasty variant of e-coli. That meant sending me back to MGH for diagnosis and selection of the right antibiotic: Bactrim.  My right leg is in a rigid brace that prevents it from bending; I’ll have it on for several more weeks. And hey, although I’ll admit to being a fair-weather fan, with both US and England still in the World Cup, it’s not the worst thing to have some spare time.

On MGH and Vuvuzelas

MGH appears well run, which is not to say that there are times when I have been dissatisfied. Above all, of course, is the need to ensure safety of the patients and freedom from obstacles to that purpose. The parts of the organization that I come into direct contact with are the nursing staff, the facilities in the ward, and the people that maintain those facilities. There are also the doctoring teams, and at the top, the superstar specialists and surgeons. In some ways, running a hospital must be like managing a sports team, a rock star, or an airline. They all have a clientele that is willing to repeatedly spend a lot of money to receive their services, and they must maintain their reputation for excellence. It costs a lot of money to maintain these services and reputation. The bottom line, however, must be that safety is essential, while the budget for safety and the financial benefit is impossible to measure. Back to the nursing team then, I am somewhat surprised that, unlike most major hospitals in the Boston area, MGH does not have a nurse’s union and it appears that management actively discourages it. An entry in Wikipedia reads as follows:

The vast majority of MGH’s thousands of registered nurses are not represented by a union. While sister hospitals in the Mass General Brigham (MGB) systems […] have nurses represented by the Massachusetts Nursing Authority, MGH nurses have historically voted against unionization.”

The entry goes on to notes that 88% of physicians voted in 2025 to unionize, but that Nurse Practitioner and Physicians Assistants are predominantly non-unionized. Reading some additional  articles it seems that the board fears reputational loss, which in turn lessens the ability to attract top-rated staff, and overall loss of management control – both of which I understand. What I do miss, however, is the apparent lack of specialized training and a reliance on on-the-job training. This latter method, although essential part of training, carries the risk of instilling sub-optimal practices simply because they are easier to use. It also encourages the acceptance of work-arounds leaving the obstacles in place. For example, the nurses frequently complain about the new suction pumps used with the Jackson-Pratt bulb drains that pull liquids from the site of the surgery. In my case, I have two bulbs and sets of tubing that work with a single suction pump. The new pumps apparently have more features than the old pumps, but they set off alarms multiple times a day. The alarm is particularly discordant, and seems to have based on the sound made by a vuvuzela. This is obviously an annoyance to the patient, but it is also a distraction to the nurses who may be engaged in other tasks requiring their concentration.

It seems that the pumps were introduced using a train-the-trainer. Nurses also do not have any channels for expressing their frustration with the device. I was also disappointed when I mentioned the applicability of safety management systems in healthcare to Nick, my nurse for the day. He had never heard of the work of Jim Reason in this area. This was a change from my experience as a cancer patient at Brighham and Women’s 20 years ago. There, the physician team and nursing team did know about him, and his work developing the famous swiss-cheese model. Pushing further, I asked him if he had read anything by fellow Bostonian, Atul Gawande. Nick just asked if he was born here? (He wasn’t. He was born in Brooklyn, NY). Bottom line, I think that I would like nurses to recognize their calling and the role that they play in healthcare. As I’ve said many times since I’ve been here, I’d like the person asking about “where does it hurt?” and “what’s my pain level?” to actually have experienced pain themselves.

I’ve been reading up on my surgeon, Santiago Lozano-Calderon. SLC as I’ve referred to him here, or ‘Santy’ as members of his team call him. I see that the orthopaedic oncology area in which he works incudes the evaluation and treatment of primary benign and malignant tumors of bone and soft tissue, as well as metastatic bone disease. It’s an area where we don’t have all the answers and difficult to make precise diagnoses. It is eminently reasonable, that six weeks after my first appointment with him, I still don’t have a diagnosis.

Second Step

The second surgery on my right leg took place a week ago today. I was in the operating room for over 12 hours. Most of my right leg has been replaced.  The bottom 8 inches or so of my femur is new, connected to a new artificial knee, connected in turn to a new tibia that connects to the few remaining inches of the old tibia. Given that my right hip is already artificial you’d think that would come with superpowers, but so far nothing. I was in a lot of pain, I mean a lot, for the first two days. Then with all the pain medications I started hallucinating but I’m on the mend now. Just  finished up a session of PT, and hopefully later this week they’ll be able to discharge me to an acute care rehab closer to home.

One Step at a Time

An update on my surgery: I was admitted to MGH last Thursday (6/11) and had surgery on my left leg that morning. The good news is that the lesion was benign. After curettage to scrape out the tumor, the surgeon packed the cavity with bone cement and fastened a metal plate over it with screws. The wound is healing well. I had my first PT appointment yesterday where I was able to bend the leg about 80° and put my full body weight on it. The next surgery, on my right leg, is scheduled for tomorrow and will be more extensive. Miranda has flown in from Sacramento, and she and Maureen have visited every day. I can’t praise MGH enough – Violny, Caroline, Angela, and the rest of the nursing staff on the floor are great and I’m managing my pain.