Monthly Archives: May 2026

Day 18: Friday, May 29

Up at 4:00 AM to ride into Boston for the MRI. Stopped at Dunkin’ to pick up a preordered breakfast, and on the road by 4:45 AM. Very little traffic at this time of day, made it to MGH by 5:30. Maureen dropped me off at Yawkey,  parked, found a wheelchair,  and wheeled me over to the main wing and Ellison section. But of course it wasn’t open yet since the appointment was for 7:00 AM. Coffee, and chattered with a couple in the waiting room from Manchester New Hampshire.

I had two MRIs scheduled. There were two copays at $350.00 per MRI. The note from the radiology conference reads:

“Discussed patient in radiology conference and recommend right tibia MRI with and without contrast given the cartilaginous lesion with scalloping and signal on PET. MRI right tibia through the right distal femur lesion ordered. Left femur MRI ordered for left femur lesion on PET.”
Signed: Mattie Elizabeth Raiford MD Orthopaedic Oncology Fellow.

The techs were helpful and got me on the table. Roll cushion under knees, feet strapped together, weighted cover on abdomen and strapped in,  ear plugs, and an emergency button, just in case. I ask for something to cover my eyes. Their Spotify playlist is down so I’ll just have to deal with the clicks, whistles, whirrs, thumps, and so on. I’ve had MRIs before so I know what to expect, but this was a long one! Every now and then the table moves out and I wonder if it’s over, but no, the tech says something that I can’t hear because I’ve got ear plugs in. The table moves back in for more clicks and whirrs. I’m curious as to what is actually happening inside the machine to cause it to make the sounds. Sometimes it sounds like an overloaded washing machine.

I practice my best relaxation techniques in my mind.

’Twas brillig, and the slithy toves
Did gyre and gimble in the wabe:
All mimsy were the borogoves,
And the mome raths outgrabe.

“Beware the Jabberwock, my son!
The jaws that bite, the claws that catch!
Beware the Jubjub bird, and shun
The frumious Bandersnatch!”

He took his vorpal sword in hand;
Long time the manxome foe he sought—
So rested he by the Tumtum tree
And stood awhile in thought.

And, as in uffish thought he stood,
The Jabberwock, with eyes of flame,
Came whiffling through the tulgey wood,
And burbled as it came!

One, two! One, two! And through and through
The vorpal blade went snicker-snack!
He left it dead, and with its head
He went galumphing back.

“And hast thou slain the Jabberwock?
Come to my arms, my beamish boy!
O frabjous day! Callooh! Callay!”
He chortled in his joy.

’Twas brillig, and the slithy toves
Did gyre and gimble in the wabe:
All mimsy were the borogoves,
And the mome raths outgrabe.
  • Reciting Jabberwocky inviting visualization of each word.
  • Diaphragmatic breathing. Inhale through the nose for four seconds keeping chest still and tightening the diaphragm. Press lips and exhale for a count of eight. Repeat 10 times. “one two three four, one two three four five six, seven eight. Two, two three four…”
  • Reciting the alphabet, with and without numbers.
    • One-A-A-One, Two-B-B-Two, Three-C-C-three, …
    • Visualize the letters and numbers as I do this.
    • Repeat backwards from Z to A.
  • Move attention in my head in different directions and hold for a few seconds at each position: right, middle, left, up, down, forward, back, in, out.
  • Focus on the machine noise to the exclusion of everything else and let it envelope you.
  • Empty mind and invite visualization. Could be patterns, comma, faces, scenery, but don’t try to identify what I’m seeing.

An hour later, the table comes out and they sit me up to insert an IV of gadopicienol. Wikipedia says it’s a “paramagnetic macrocyclic non-ionic complex of gadolinium” and that “Above 20 °C gadolinium is the most paramagnetic element.” Back in again. It feels more uncomfortable this time – not horrible, but noticeable, and it seems to be generating some heat.

At long last the procedure is over. I haven’t moved more than a millimeter for an hour and a quarter! It’s over, and we don’t have any more appointments for a while, so it’s back to the car to return home and have lunch.

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Day 17: Thursday, May 28

Today I go back to Lozano (SLC) for a follow-up. I have some trepidation as to what he may say, but I’m eager to get this phase over. Getting down the stairs this morning and into the car was quite a bit easier than the last time, but now that I have a hard cast over my knee I have to learn it all over again. I’ll have this cast for the next two weeks.

The appointment with SLC was tiring. The traffic on the drive in was horrible. It took a bit over 2 hours. Once there, they took an X-ray of the leg then a short wait to see SLC. He’s optimistic, he said they discussed my case with a (weekly?) meeting of radiographers. Based on that meeting, they agree what the lesions aren’t but not what the lesions are! There are apparently some more lesions on the right femur as well. More tests! He spoke disparagingly of Shield’s Health (I’d sort of gotten that impression earlier that they’re in it just for the money!) Anyway, he wanted a new MRI soon and the only one we could get was 7:00 AM tomorrow at MGH! So we’ll be doing the trip again. In the evening I had a short call with Eddie Chen. Nothing much to add. He defers to SLC.

Started reading “Gardens—An Essay on the Human Condition” The first chapter was illuminating how he brings together the stories of Gilgamesh, Odysseus, the Garden of Eden and Dante’s Inferno. Harrison shows how they are similar and tell the same story of how humans think about gardens.

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Day 16: Wednesday, May 27

Spent some time today watching WordPress training videos. Added menus and breadcrumbs. Turns out that WordPress 7.0 now has a breadcrumb block, but it seems that many of the themes don’t support it. Ended up switching to the Astra theme, as it has native breadcrumbs, you don’t need to add a plugin.

Top level menu items are: Home, Blog, Books, Garden, Food, and Travel. I may change this, but it’s a good basis for the kinds of things I want to write about.

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Day 15: Tuesday, May 26

The new normal is establishing itself. I’m still confined to bed, but Maureen helps me with the shower every other day. I can also get in and out of the bathroom by myself with the help of the walker. Still some pain, but getting a little movement back in the broken leg.

I posted on Facebook a picture and an article about the plant sale, and casually mentioned the broken leg so, the word is out.

My blog is coming along. I set up a WordPress account on Bluehost. They seem to be a good vendor with decent support. It’s also the platform that the Acton Garden Club uses. I’m following lessons from Yoast, which I like (so far). There was an issue with one of the lessons about the widget editor that didn’t match the settings in WordPress 7.0, but after a long chat with Yoast I found a plugin that restores the old editor, called “Classic Widget.” It’s not been tested for 7.0, but it seems to work OK.

As far as creating posts, I’m writing them down in my notebook then dictating them into Word, where I can review for transcription mistakes and adjust the phrasing. I then cut and paste the post into WordPress.

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Day 12: Saturday, May 23rd

Much better sleep! 85 Fitbit score and for the first time in many nights I hit my deep sleep benchmark of one hour 25 minutes. (Two Tylenol PM the night before may have helped!) The MRI that was originally scheduled for this morning was cancelled. Yesterday, Shields Health called me to say that the appointment would need to be rescheduled because it turns out that it needed to be “with contrast” and that takes longer. Then there were no openings until mid-June, either at Emerson or any facility nearby. Messaged my docs and it turns out that Lozano the “boss” for now, doesn’t need it. Messaged Driscoll and he said, OK, then cancel it.

Looked for transcription software on Google. Turns out that Word has transcription built in, so beginning to just transcribe my handwritten comments. Also, set up a one-year subscription on WordPress. Bit of a hassle to set up and spent an hour on chat trying to explain what the problem was. Eventually I called up and it turned out that somehow I had managed to have two subscriptions in the cart. A nice agent sorted stuff out. Everything set now.

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