Day 50: Tuesday, June 30

Another rough night. At 11 pm I had another short episode of uncontrolled shivering followed by feeling very cold. I asked the nurse for extra blankets – initially she refused outright to give them to me under the misapprehension that I was running a fever. I assured her I was not running a fever, that she could to take my temperature, and that I’d had similar episodes of feeling cold without running a fever. I must say I was annoyed at her reaction, falling back on a cookie-cutter remedy to shivering without asking me about my actual experience.  I politely repeated my request – no point in pissing of the nurses if you can avoid it. I woke up at 4:15, tired, but feeling quite a bit better. I wanted to find out if I could take my morphine meds, so I asked the same nurse to take my blood pressure. She replied that she didn’t want to. When I told another nurse, Catherine about this later she passed it off as a bad joke. Maybe it was, but I didn’t find it funny. She did eventually put the cuff on me but then did not come back for 20 minutes to read it. It was normal. Bad nurse went off duty – hope I don’t get her again tonight. Catherine came on about 7:00 to take care of me, replaced the antibiotics bag which had mysteriously been disconnected overnight, and gave me my meds, including 30 mg of morphine. It’s hard to say if it works better or worse than the other opioid based painkillers, but I’m not in the mood for experimentation. The NP came mid-morning to remove my last remaining drain. I also got a visit from an oncology doctor, Jessica Lin, who let slip that pathology had identified the cancer as a chondrosarcoma, but no further details as to grade. When I said that I hadn’t heard this from SLC she back-pedalled a bit saying, maybe she was mistaken.  Maureen came late morning and left early afternoon, and I’m still on the ER overflow, although status on the portal has changed to say “Preparing for Admission.”

Worked on blog all afternoon, then at 5 pm Nurse Maddie came to tell me that I had a room. Mad unplugging of everything. While all this was happening the ward nurse came with an iced drink of somethin nasty. It was contrast for a CT scan at 5:30, for which, of course they had to remove the brace. Scan was about 20 minutes after which they had to replace the brace which they couldn’t get right. Had to have the nurse adjust it properly when I got back to the ward. Finished packing up and then was wheeled up to the 16th floor. Feeling pretty good right now except for some leg pain.

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