Monthly Archives: June 2026

Day 37: Wednesday, June 17th

Woke up.

Happy birthday! It hurts today.

Pain right now is intense.

Starting to hallucinate.

–later–

Lots of pain in the morning, interrupted by spasms of even more pain. I used the Patient-Controlled Analgesia (PCA) device to deliver measured doses of Dilaudid[1] every six minutes, but that didn’t really work because I’d need more than the measured dose to relieve the pain.  For me, at least, the point where pain relief starts to kick in lags the time of taking the dose by more than six minutes. I’d find myself overshooting the total dosage needed and move into hallucination territory. I’d then start to actively hallucinate by seeing things: usually people that I didn’t recognize, but also the occasional angel or demon. At other times I would also phase out (like Mitch McConnell). For a few seconds I would not be present before returning to what, I’d assume was reality, but could also be to a different hallucination. Sort of like Chuang Tzu’s butterfly.

I spent the early part of the day in the PAC fighting pain. Later I was moved to a regular ward on the 6th floor of the Ellison building. The doctor and I discussed pain management and they agreed that I could take larger oral doses of oxycodone, up to about 20 milligrams, every few hours. The protocols for dosage and frequency are set by the doctor for how often a nurse can give me painkillers,  but these tend to be minimums; intervals will often be longer. Two reasons for the longer intervals: if I was asleep the nurse would not wake me to give me the pill. Second, most painkillers, including oxycodone, dilaudid, and morphine.  are Central Nervous System (CNS) depressants which result in a drop in blood pressure. If my systolic blood pressure was under 100 the nurse would not give me the painkiller. The diastolic pressure does not seem to be an issue.


[1] They gave me Dilaudid even though I’d listed an allergy to it on the grounds that last time when fighting cancer it gave me hallucinations. In fairness though, it seems that I’m quite susceptible hallucinations as I found later that I got them with sufficiently high doses of oxycodone.

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One Step at a Time

An update on my surgery: I was admitted to MGH last Thursday (6/11) and had surgery on my left leg that morning. The good news is that the lesion was benign. After curettage to scrape out the tumor, the surgeon packed the cavity with bone cement and fastened a metal plate over it with screws. The wound is healing well. I had my first PT appointment yesterday where I was able to bend the leg about 80° and put my full body weight on it. The next surgery, on my right leg, is scheduled for tomorrow and will be more extensive. Miranda has flown in from Sacramento, and she and Maureen have visited every day. I can’t praise MGH enough – Violny, Caroline, Angela, and the rest of the nursing staff on the floor are great and I’m managing my pain.

Day 34: Sunday, June 14

I woke up in recovery in the Post-Acute Care (PAC) facility at MGH here. Disoriented of course. My throat was dry and my arms hurt. Not a lot of pain in the leg because of the nerve block. SLC stopped by and told me that the lesion was benign and therefore they just scraped the lesion and put a metal cap over the  area, screwed into the bone. Maureen and Miranda came in and stayed with me for about an hour. She said I looked pale. Nurses were great, stopping in every few minutes to check up on me. Relieved of course that it was benign and that they didn’t need to cut any bone out. SLC says it would be very unusual if the lesion on the right leg was any different to what was on the left leg. It’s still going to be a major surgery.

Moved from the PAC into a regular ward. I have a bed in a double next to the windows where I can look out on a mass of grey pipework and air conditioning units. The occasional sparrow flies up to the window. I can see a small tree fluttering in the wind, growing on what I think must be a balcony above. The nurses in the ward are, for the most part responsive, although there was an initial problem with my call button. The room is a bit stuffy.

The first day I had a roommate who was only here for a few hours. He left without completing the discharge. Followed the next day by another patient. I don’t know what he was in for as he was quiet and wanted the door closed, which made it even more stuffy in the room. The temperature in Boston has been in the 80s. After he was discharged, and later in the evening of the second day here, I got a third roommate—young guy—sounds like  they’re going for some major spinal surgery.

Watched two games of the World Cup so far. The first one, USA versus Paraguay, I watched on my phone. The US exceeded my expectations with a 4-1 win. I then started a Fubo subscription to watch Scotland versus Haiti on my laptop. Scotland were lucky to win, I think. Haiti came so close to scoring in the second half.

They’re still working on identifying this specific malignant cancer. There are two possibilities:  Chondrosarcoma, for which no chemo will be needed. The second Chondroblastic Osteosarcoma for which chemo will probably be needed.

I wrote an update “One step at a time”  about my first surgery to send out to friends and family.

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Day 30: Wednesday, June 10th

Spent the morning trying to figure out what’s wrong with the computer. Ran various scans with Windows Defender – nothing found. Downloaded and ran scans with Malwarebytes –nothing found. Talked to Chris at AutoTek in Hudson. He said he didn’t think it was a router but to try talking to Verizon anyway. I called up Verizon. Found nothing. For now, turned off Wi-Fi on the laptop and shut it down. Maureen took the laptop into AutoTek and he was able to fix it. Yay! He said it was a malicious BHO (Browser Helper Object) but it was weird as it kicked in even when I hadn’t opened a browser, and didn’t kick in if I turned of the WiFi.

Later in the day Jean Butler from the Garden Club and we talked for about an hour.

This will probably be my last blog post for a couple of days. Ttomorrow I go into MGH for my first surgery.

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Day 29: Tuesday, June 9th

Sleep is getting better due mainly, I think, to using sleep sounds to help me fall asleep. I’m using a free app called Medito for this. There are several other apps out there but they all want me to pay for a subscription. I haven’t read up on why sleep sounds help, how to measure its effectiveness, or what sounds and music work better than others, but it does seem to help. I did wake up for a period because I had an attack of proctalgia fugax that lasted for about half an hour. Not quite as intense as other episodes, but painful nonetheless, and made me squirm. I can’t tell what triggered it: maybe stress, lying in bed so much, dehydration, or maybe the bratwurst I had for supper last night.

I was feeling kind of crappy on Sunday following the late evening MRI at MGH Waltham. I’m so glad I’ve gotten Doctor Spinelli to approve the handicap placard before all of this happened. We get all the good parking spots! I took a Valium as soon as I checked in, I suppose it kicked in, but honestly I don’t think it helped me much. The procedure was a bit shorter than the last one, but not by much. We got there around 7:30 PM and left a bit more than two hours later.

Tom came by to see me in the afternoon and I perked up a bit. He and Karen had recently got back from a safari with OAT, taking in Botswana, Zambia, and Zimbabwe. He had a lot of pictures of lions, hippos, giraffes, elephants, jackals, hyenas, and so on. This might be the trip Maureen and I do after I’m back on my feet. Tom and I chatted for a couple of hours. It was really good to see him. He’s the only one from the last few years of Volpe that I’ve kept in contact with since I retired.

Yesterday was a slow day, but I did draft and post a review of the book I just finished: “Gardens.” I stayed upstairs all day.

Had a call this morning with Alex, the anesthesiologist that will be at my surgery, and we went over medications and other safety questions. It turns out that they are starting with my right leg after all, and that the second surgery on the left is provisionally booked for June 15th. The surgery for the 11th is booked for four hours! Alex did not know when the surgery was and suggested I message SLC’s team, so I did. Kelsey called me right back. We need to be there by 9:00 AM, meaning that we’ll need to leave Stow by 7:00 AM because of the traffic.

After that I came downstairs to sit in the recliner in the front room. It’s comfortable down here. I put in an order for an Aura 5 for Maureen. Hope she doesn’t notice the credit card charge right away, as then I’ll need to explain. I’d previously texted Miranda about this and she chipped in $300 – totally unexpected, but I’m sure she wants it to be from both of us.

I’m listening to RUR by Karel Čapek on Audible. I’m interested in what this play can tells us about AI. A couple of things: Robots have no soul and robots sometimes get something called ‘Robot Cramp.’ Domin, the manager, calls it a “Flaw in the works.” I plan to write more about RUR in a book review.

I moved to the family room and tried to install Fox TV (for the World Cup, obviously, not the “news”) and HBO on the laptop. I can get these on the phone because we get them from Verizon. Apparently that doesn’t count for Windows laptops. I called up Verizon, and spent over an hour trying to get them to fix it, only for them to say it wasn’t going to work. And of course they tried to upsell me!!!

Watched John Stewart. He had Jane Fonda (she’s 88!) as a guest who was promoting an upcoming concert “Rise Up and Sing out.” They showed the URL, so I went there to register, and wouldn’t you know it, somebody had spoofed the site and it installed a virus on my laptop. Spent an hour with Microsoft to check that my account had not been hacked and to find out how to fix it.

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