Tag Archives: Home

Day 52: Thursday, July 02 – Discharge

PT came early and we talked about equipment. She adjusted my brace which had not been right since the CAT Scan techs took it off two nights ago. She also talked about the importance of keeping the foot in the proper position, otherwise it may set in a bad position when I take off the brace. The boot is used for when I’m lying down or I’m in a chair, which is most of the time; it’s not a boot for walking. She gave me an exercise to strengthen the foot with a band. We also did the stairs bum-sliding and she was satisfied with that.

Back in the room I still expected that discharge would be Friday, but after Maureen had left I saw a doctor from infectious diseases who said I might be discharged today. This was confirmed by another infectious diseases doctor, who also told me about the antibiotic I had to take. When Maureen arrived she joined in the discussion. The doctor ordered the required medications from the hospital pharmacy. At 3:00 PM I started watching the Spain Austria game in the World Cup. I wished Martin was still around to see it. I was supporting Spain, Maureen, although not following the game, was for Austria. Just after the first hydration break Oyarzabal scored to give Spain a 1-0 lead.

The game had just resumed when I got a message from the pharmacy that the meds were ready for pick up. The nurse, Vallerie, came in with a Doctor Jill something to discuss discharge, and to tell us that there was another medication we had to pick up. While waiting for the pharmacy she told us about the antibiotic, it’s called Bactrim. We talked about dosage, also possible minor and major side effects.

A little after half time everything was in order for me to leave. I took 15 milligrams of morphine, got into wheelchair, and Maureen wheeled me to the hospital pharmacy to stand in line for the remaining medication. Maureen wheeled me outside and parked me while she left to get the car. I had never gotten in the car before with the brace so I wasn’t sure if it could do it. But it did. It was harder even than when I had the cast.

It was a relatively quick drive home, and I bum-slid up to the bedroom and to the bed. Quite exhausting! Took another 15 mg of morphine. Maureen left to get milk and a few groceries, and to pick up Trixie from Andrea’s. Maureen back home. Trixie very curious! Happy to be home!

I sent out an update to my correspondents “One Step Beyond.” So far, no one has caught the reference to the song by Madness.

Published by , in Blog.

Day 30: Wednesday, June 10th

Spent the morning trying to figure out what’s wrong with the computer. Ran various scans with Windows Defender – nothing found. Downloaded and ran scans with Malwarebytes –nothing found. Talked to Chris at AutoTek in Hudson. He said he didn’t think it was a router but to try talking to Verizon anyway. I called up Verizon. Found nothing. For now, turned off Wi-Fi on the laptop and shut it down. Maureen took the laptop into AutoTek and he was able to fix it. Yay! He said it was a malicious BHO (Browser Helper Object) but it was weird as it kicked in even when I hadn’t opened a browser, and didn’t kick in if I turned of the WiFi.

Later in the day Jean Butler from the Garden Club and we talked for about an hour.

This will probably be my last blog post for a couple of days. Ttomorrow I go into MGH for my first surgery.

Published by , in Blog.

Day 29: Tuesday, June 9th

Sleep is getting better due mainly, I think, to using sleep sounds to help me fall asleep. I’m using a free app called Medito for this. There are several other apps out there but they all want me to pay for a subscription. I haven’t read up on why sleep sounds help, how to measure its effectiveness, or what sounds and music work better than others, but it does seem to help. I did wake up for a period because I had an attack of proctalgia fugax that lasted for about half an hour. Not quite as intense as other episodes, but painful nonetheless, and made me squirm. I can’t tell what triggered it: maybe stress, lying in bed so much, dehydration, or maybe the bratwurst I had for supper last night.

I was feeling kind of crappy on Sunday following the late evening MRI at MGH Waltham. I’m so glad I’ve gotten Doctor Spinelli to approve the handicap placard before all of this happened. We get all the good parking spots! I took a Valium as soon as I checked in, I suppose it kicked in, but honestly I don’t think it helped me much. The procedure was a bit shorter than the last one, but not by much. We got there around 7:30 PM and left a bit more than two hours later.

Tom came by to see me in the afternoon and I perked up a bit. He and Karen had recently got back from a safari with OAT, taking in Botswana, Zambia, and Zimbabwe. He had a lot of pictures of lions, hippos, giraffes, elephants, jackals, hyenas, and so on. This might be the trip Maureen and I do after I’m back on my feet. Tom and I chatted for a couple of hours. It was really good to see him. He’s the only one from the last few years of Volpe that I’ve kept in contact with since I retired.

Yesterday was a slow day, but I did draft and post a review of the book I just finished: “Gardens.” I stayed upstairs all day.

Had a call this morning with Alex, the anesthesiologist that will be at my surgery, and we went over medications and other safety questions. It turns out that they are starting with my right leg after all, and that the second surgery on the left is provisionally booked for June 15th. The surgery for the 11th is booked for four hours! Alex did not know when the surgery was and suggested I message SLC’s team, so I did. Kelsey called me right back. We need to be there by 9:00 AM, meaning that we’ll need to leave Stow by 7:00 AM because of the traffic.

After that I came downstairs to sit in the recliner in the front room. It’s comfortable down here. I put in an order for an Aura 5 for Maureen. Hope she doesn’t notice the credit card charge right away, as then I’ll need to explain. I’d previously texted Miranda about this and she chipped in $300 – totally unexpected, but I’m sure she wants it to be from both of us.

I’m listening to RUR by Karel Čapek on Audible. I’m interested in what this play can tells us about AI. A couple of things: Robots have no soul and robots sometimes get something called ‘Robot Cramp.’ Domin, the manager, calls it a “Flaw in the works.” I plan to write more about RUR in a book review.

I moved to the family room and tried to install Fox TV (for the World Cup, obviously, not the “news”) and HBO on the laptop. I can get these on the phone because we get them from Verizon. Apparently that doesn’t count for Windows laptops. I called up Verizon, and spent over an hour trying to get them to fix it, only for them to say it wasn’t going to work. And of course they tried to upsell me!!!

Watched John Stewart. He had Jane Fonda (she’s 88!) as a guest who was promoting an upcoming concert “Rise Up and Sing out.” They showed the URL, so I went there to register, and wouldn’t you know it, somebody had spoofed the site and it installed a virus on my laptop. Spent an hour with Microsoft to check that my account had not been hacked and to find out how to fix it.

Published by , in Blog.

Day 24: Friday, June 5th

Yesterday evening I sat in on a Zoom call for Master Gardener Helpline training. These calls are more engaging than the earlier lecture series as we get to go into breakout sessions to discuss and critique responses from actual helpline calls. I was in a group with John, from my “Grow-It-All” pod and David from another group. It was refreshing to talk to folks with common interests. I sat up in my wheelchair and used my laptop. I do miss my office setup though – having two screens makes it easier to stay in the meeting without having to cycle the single screen between video and browser.

I took an oxycodone around 10 pm, and another when I woke up a little after 2 am. I think I got a better night’s sleep even though Fitbit said I only got a 73.

Today I had an appointment at MGH Waltham for more tests. An EKG, blood tests, and an MSRA swab. Also did the hepatitis-B titer to check immunity following the series of vaccinations I had for Garden Therapy volunteering at Emerson. Results aren’t all in yet, but everything is looking normal, except the white blood cell count has spiked to 15.84 K/UL (thousands per microliter), above the normal range. It was 9.8 back on May 8th. (I’m guessing it’s the effect of healing from the fracture.)

Got emails from Bill, John, and Katy.


Bob,

As well as forwarding your email to our fellow Jesus physicists, I took the liberty of sending it to Robert McGowan, whose wife Janis (Kay) was in our year and did physics at St Hugh’s.  As I’ve mentioned in the past, Janis had MS and died from its effects a few years ago.  In his reply to me, Robert mentioned that you had fixed Janis’ record player while at Oxford, and that he recalled seeing you at a party in St Albans held by John (Taylor) some time later.  He sends his best wishes and knows that Janis would do the same if she could do so.

I mention Robert because Anna and I kept in touch with Janis and her family over the years.  They had three boys, one of whom lives in Manchester while the other two are married with their own families and live in Auckland, New Zealand.  In fact, Robert and the Mancunian son visited us here in Cardiff the weekend before last.  Luckily the weather was good and we went to some local attractions and had a barbeque on the Sunday.

Here’s a link to a YouTube video of some children singing, which might cheer you up: 1af – Ysgol Pen y Garth – Cor Bl.6 ac iau – Eisteddfod yr Urdd 2026 .  These kids won the primary school choir competition at the national youth eisteddfod last week.  The choir includes my great nephew Rhys. Rhys is in his last year at primary school.  His main interest is cricket and I was surprised to see him in a choir!

Best wishes,

Bill


Hi Bob,

Judy and I were so sorry to read your message that Bill forwarded last night. Just last week, Judy and I were staying with Gail and Nick in their rambling house in the far south of France – an old olive mill near the coast between Marseille and Toulon – and chatting about old friends such as our assorted bunch of so-called physicists at Jesus and St Hugh’s. It’s far too long since we last saw you (except on a Zoom screen), and I was really looking forward to catching up with you at the gaudy. Let’s hope that might still be possible, even though it sounds as if you’re a doubtful starter for the fixture at this point.

Talking of fixtures, are you still an Arsenal fan? We all are now, especially Arthur and (slightly less fanatically) his younger brother Nick, whose wife Eleanor saw him through a pretty drastic course of treatment for bowel cancer about 3 years ago, and last September miraculously produced our first grandchild Iris. Arthur himself was diagnosed a year ago with a condition you’re all too familiar with – in his case, a fast-growing mediastinal lymphoma – which was very promptly treated at University College Hospital with an intensive course of chemo and immunotherapy, and now seems to have disappeared without trace, as (we hope) has yours.

Equally miraculously, Arthur’s name came up on the ballot for a ticket to the Champions League final in Budapest, which turned out to be a massive Gooners’ festival that everyone enjoyed, even though they weren’t too thrilled with the penalty shootout. Unfortunately he couldn’t be back here in time for the Premier League victory parade on Sunday afternoon, which turned out to be possibly the biggest-ever event of its kind in the UK, with more than half a million turning the whole area from Finsbury Park to Islington into a sea of red. Apparently, half of Africa had also celebrated Man City’s draw at Bournemouth, which handed Arsenal the title: I hadn’t realised how much Arsène Wenger had done in his time to bring top African players to England, and how much of a hero that had made him in Senegal, Nigeria, etc. Sunday’s victory parade was a joyful spectacle of multiculturalism that actually made us proud to be Londoners, no matter how much bilge the far-right wingnuts spew out about our city on social media.

Apart from the small matter of your two legs and the impending operations, I hope you, Maureen and Miranda are all doing well, and that there’s a glimmer of hope that we might yet see you in Oxford in September.

Very best wishes from us all,

John


Oh dear, sorry to hear all this but as you say, it will be a great opportunity to catch up on all the books you have been meaning to read and all the music you can now catch up on.

Our news is that we have just come back from Spain with all the fam. Grandchild no 2 is due in October. Bonnie is a constant ray of sunshine, chatters away and loves stories, singing and getting any passing adult to draw cats for her. She learned to say hola and gracias to the Spanish waiters which endeared her to them as you can imagine.

I think I mentioned that Chris and I are going to Cousin Bea’s wedding at the end of the month so will try and get you

Some pictures of that. It will be good to see Lucy and Hattie as I’ve not seen them since Hattie’s daughter, Roisin’s wedding which must be 5 years ago. We saw Stephany last year in France but she shared with us that she had a falling out with Bea some years ago so she won’t be coming . All sounds very sad. Also she is having treatment for breast cancer which of course she is having to tackle alone.

The wedding is in Chorley, Lancashire so we will take the motorhome up and do a tour of the north which will be spectacular at the end of June. We plan on driving down to Switzerland in September where I haven’t been since we were children and then back in the uk for the new baby.

Would really love to come to the USA but just feel we can’t at present as I’m sure you understand.

Do you like Gorillaz? Give their new album a listen, I think you might like. We are seeing them in a couple of weeks at the Tottenham Hotspur stadium in London. As a massive Blur fan, anything that Damon Albarn is involved in, I am there for.

That’s it for now. I will endeavour to be a better correspondent from now on.

Love Katy x

Published by , in Blog.

Day 23: Wednesday, June 3rd

Had a Zoom call with SLC up in the bedroom. Maureen and Trixie were here. Bottom line: it’s an aggressive tumor, probably malignant, but not metastatic, in both legs. Rather than do a biopsy before proceeding he recommends surgery as soon as possible. He will do one leg at a time. The term is arthroplasty and it’s a major surgery involving replacement of the infected parts of the knee, femur, and tibia with metal parts. It sounds like four to five days per surgery, although whether immediately sequential I don’t know.

Assuming success, I can be up and about in the fall. Success rate? Risks? Potential complications? Hard to say, it seems like it’s worth a go. If I expire during surgery then that’s OK for me too, I guess. Not so much for Maureen and Miranda. It’s going to be interesting to find out how much all of this is going to cost!

The first surgery is scheduled for June 11th, so they cancelled the appointment for MGH on the 9th. I do have to have another MRI though, this one is scheduled for the 7th. I also have to have a bunch of tests.

In preparation for surgery I bought a Kindle. Curtis and Lori also lent me a pair of Bose headphones, so I’m way better prepared for hospital than I was back in 2005 when I was being treated for Burkitt’s Lymphoma at Brigham and Women’s. I also feel better than I did back then. Wonder how long that’ll last!

Published by , in Blog.